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How is the information I give you kept confidential?

Keeping your information secure is our highest priority. There are a number of regulations and policies that the Genetic Links to Anxiety and Depression study complies with to ensure data is protected and that biological samples are stored correctly.

Storage and work on personal data or biological data will always be in accordance with the current ethical guidelines, and the conditions of the consent you have provided. In the event that ethical guidelines are modified, the project will be further evaluated for ethical approval. All data will be stored at King’s College London and partner sites in accordance with the GDPR. Data will not be passed on to any third parties including your doctor, your insurance company or your employer.

All data will be used in an anonymised linked format with personal information being accessible only by the lead investigators and project co-ordinator. Identifiable volunteer information will only be available to the recruitment team as well as clinical staff who have DBS clearance and are bound to confidentiality by their University/NHS contract.  Each member of the recruitment team and collaborating clinical staff will complete mandatory training as set out by King’s College London and the NHS to ensure policies and procedures for managing confidential data are upheld.  These staff members are aware that any breach of such procedures could result in disciplinary and or dismissal from the team/service. Personal data will be stored on a secure database and securely located within the King’s College London firewall in compliance with KCL data security policy.

Staff at the NIHR BioResource’s sample biorepository will ensure that genetic samples are processed in accordance with strict health and safety guidelines and under the requirements of the Human Tissue Act (HTA) 2004. The NIHR BioResource’s sample biorepository holds an HTA license (License number: 12624). The link between the participant ID and de-identified data will be kept in a secure database accessible only to the lead investigators and senior researchers.

If you would like to read more on how we keep your data secure, click here to go to Terms & Conditions.

Useful links for more information about use of personal and biological data

The EU General Data Protection Regulation (GDPR)

The General Data Protection Regulation is an EU Regulation which was put in place to ensure the protection of all EU citizens’ data privacy. It also gives people the rights to access any information held about them.

King’s College London Data Protection Policy

http://www.kcl.ac.uk/governancezone/GovernanceLegal/Data-Protection-Policy.aspx

This policy outlines King’s College London’s policy for protecting personal information in compliance with the Data Protection Act 1998 (DPA). The university has procedures aiming to ensure that all staff, students, and agents of the university who have access to personal data are aware of their duties and responsibilities under the DPA.

Human Tissue Act 2004

https://www.hta.gov.uk/policies/human-tissue-act-2004

If you provide the GLAD Study team with a saliva sample, your biological sample is protected by the Human Tissue Act 2004. The Act regulates the removal, storage and use of human tissue and ensures all samples are collected appropriately.